Wednesday, June 26, 2013
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Heard of Periodic Fever Syndrome? I hadn't either, before today. But it seems I will be learning more about it, as this is the first actual diagnosis we have received for Molly's mystery fevers. I have to be honest, when I first heard it I thought it sounded like a load of baloney. However, having talked at length with an infectious disease specialist, it seems that not only is this a real thing, but best of all there are ways to manage it. For whatever reason Molly's body routinely thinks there is an infection to fight when there is nothing there. It's something she should outgrow in a few years, and on the off chance this is a misdiagnosis we'll know as soon as the treatment options are ineffective. The diagnosis is a clinical one - there is no medical test or marker to confirm it - but we now have a direction. The answers may not be absolute, but they're more than we've had up til now, and I couldn't be more thankful.
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Yay! So happy there's something fairly concrete to chase down!! Still praying, though! :)
ReplyDeleteGet better, Monkey!!